Nancy Goodman, Executive Director

Nancy founded and has lead Kids v Cancer since her son, Jacob, died of medulloblastoma when he was 10.  Nancy leads Kids v Cancer’s programs.

In addition, in 2012 Nancy was selected by the FDA to serve as a Patient Representative on review panels.  Nancy is a Member of the National Cancer Institute’s Board of Scientific Counselors. She also served on the November 2013 Pediatric Oncology Subcommittee of the Food and Drug Administration’s Oncology Drug Advisory Committee.

She was a member of the Stand Up to Cancer / St Baldrick’s Foundation review panel,
which selected the 2013 Pediatric Cancer Dream Team grant. She received the Rare
Disease Legislative Advocates Patient Advocacy 2012 RareVoice Award.  She was honored
at the Band of Parents 2013 Evening of Hope Gala. She was a 2014 honoree of the
Massachusetts General Hospital The One Hundred Gala.

Nancy lives in Washington, DC with her husband, Michael Froman, and her living children, Ben and Sarah.  To see a complete list of Nancy’s honors, leadership roles and presentations, please click here.  Nancy can be contacted via email at

Jennifer Flynn, Social Media Director

Jenn leads Kids v Cancer’s social media effort and runs the facebook pages and cause pages. Jenn also coordinates volunteer efforts and facilitates development events for Kids v Cancer. A Masters in Social Work student, Jenn knew and loved Jacob from the time he was a very little boy until his death. Jenn can be contacted via email at

Elena Gerasimov, Compassionate Use Navigator

Elena directs the Compassionate Use Navigator program, helping physicians and families apply for experimental drugs. She earned an MA degree in journalism and worked as a science and business journalist, and as a program coordinator at the Johns Hopkins University for 12 years. After completing an MPH degree from George Washington University, she worked in clinical and epidemiological research. Elena can be reached at

Leika Uzcategui, Business Manager

Leika is Kids v Cancer’s business manager. Leika has a decade of experience managing financial, sales and customer relations at an architecture and general contracting company. Leika can be contacted at

Parents Advisory Board

Kim Prokop, Chair of Parents Advisory Board, mother of Hannah,


Kids v Cancer gratefully acknowledges the efforts of:


Dr Peter Adamson, The Children’s Hospital of Philadelphia
Dr Susan Blaney, Texas Children’s Hospital
Dr Stephen Chanock, National Institute of Health
Dr Nai Kong Cheung, Memorial Sloan-Kettering Cancer Center
Dr Margaret Foti, American Association of Cancer Research
Dr Maryam Fouladi, Cincinatti Children’s Medical Center
Dr Sharon Gardner, NYU Langone Medical Center
Dr Richard Gilbertson, St Jude Children’s Research Hospital
Dr Lee Helman, National Institute of Health
Dr Kim Kramer, Memorial Sloan-Kettering Cancer Center
Dr Crystal Mackall, National Institute of Health
Dr David Poplack, Texas Children’s Hospital
Dr Charles Sawyers, Memorial Sloan-Kettering Cancer Center
Dr Giselle Sholler, Van Andel Research Institute
Dr Stephen Spielberg, DIA
Dr Loice Swisher
Dr Michael Taylor, The Hospital for Sick Children (SickKids)


Covington & Burling LLP
Friends of Cancer Research
Gilbert & Wolfand, PC
National Organization for Rare Diseases
NYU Langone Medical Center
Patton Boggs LLP
Rare Disease Legislative Advocates
Rare Disease Legislative Advocates
Sidley & Austin, LLP
Sphere Consulting, LLC
Hogan Lovells
Zuckerman Spader


Mary Catherine Andrews
Carlos Angulos, Zuckerman Spader
Michael Berman, Duberstein Group
Sarah Caputo
Susie Block Casdin
Jim Courtovich, Sphere Consulting
Amy Cuniffe
Ellie Dehoney, Research!America
Jim Dougherty, Arcus Ventures
Jim and Patti Doyle, Business Forward
Cheryl Effron, Conjunction Fund
Michael Froman
Pete Goodloe, Sidley Austin
Brian Griffin, Duberstein Group Inc
Patrick Griffin, Peck Madigan Jones
Ken Levinson
Allan McArtor, Airbus, ALSAC
Lisa Paulsen, Stand Up to Cancer
Jamie Rubin
Phil Schiliro
Ellen Sigal, Friends of Cancer Research
Jeff Allen, Friends of Cancer Research
Jane Steinberg
Reid Stuntz, Stuntz Strategies
Laura Wang
Adrienne Westcott
Lynne Zydowsky
Deborah Pryce
Caroline Brown, Covington & Burling
Julia Jenkins, Rare Disease Legislative Advocates
Peter Goodloe, Sidley & Austin, LLP
Jen Bernstein, JC White Consulting
H.P Goldfield, Hogan Lovells, LLP
Griffin Williams
Amy Gilbert, Gilbert & Wolfand, PC
Laurine Toone, Gilbert & Wolfand, PC
Sung Poblete, Stand Up To Cancer
Kurt Campbell, The Asia Group LLC
Bianca Nunes
Grant Young, Covington & Burling
Shifra Srolovitz
Preeti Saigal
Lynne Zydowsky, Zydowsky Consultants and Alexandria Summit
Joel Marcus, Alexandria Summit
Diane Dorman
Bob Tepper, Third Rock Ventures
Julian Adams, Infinity Pharmaceuticals
Tony Coles, Yumanity





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