Nancy Goodman, Executive Director

Nancy founded Kids v Cancer when her son, Jacob, died of medulloblastoma.  Nancy leads Kids v Cancer’s programs.

In 2012, Kids v Cancer’s Creating Hope Act, which creates a market-based incentive to spur pediatric rare disease drug development, was passed into law as 21 USC 360ff. Since then, $1 billion in Creating Hope Act priority review vouchers have traded with the last voucher trading at $350 million, providing a significant incentive for pediatric rare disease drug development. Kids v Cancer is also championing the Kids Innovative Drugs Initiative (KIDS Initiative) to reform the Pediatric Research Equity Act.

Before Kids v Cancer, Nancy had worked at Morrison & Foerster LLP on international trade law and at the World Bank legal department.  She was a full-time mother when Jacob was diagnosed.

Nancy graduated from the University of Pennsylvania with a BA, The Harvard Kennedy School of Government with a MPP, and The Law School at the University of Chicago with a JD.  She lives in Washington, D.C. with her husband Michael and her living children, Ben and Sarah.

To see a complete list of Nancy’s honors, please click here.  Nancy can be contacted via email at nancygoodman@kidsvcancer.org.

Jennifer Flynn, Social Media Director

Jenn leads Kids v Cancer’s social media effort and runs the facebook pages and cause pages. Jenn also coordinates volunteer efforts and facilitates development events for Kids v Cancer. A Masters in Social Work student, Jenn knew and loved Jacob from the time he was a very little boy until his death. Jenn can be contacted via email at jenn@kidsvcancer.org.

Elena Gerasimov, Compassionate Use Navigator Program

Elena directs the Compassionate Use Navigator program, helping physicians and families apply for experimental drugs. She holds an MA degree in journalism and an MPH degree, and has over 20 years of experience as a science and business journalist, program coordinator,  and an epidemiological researcher. Elena can be reached at elena@kidsvcancer.org.

Leika Uzcategui, Business Manager

Leika is Kids v Cancer’s business manager. Leika has a decade of experience managing financial, sales and customer relations at an architecture and general contracting company. Leika can be contacted at leika@kidsvcancer.org.

Parents Advisory Board

Kim Prokop, Chair of Parents Advisory Board, mother of Hannah, www.hannahpro.blogspot.com

 

Kids v Cancer gratefully acknowledges the efforts of:

 

Physicians:
Dr Peter Adamson, The Children’s Hospital of Philadelphia
Dr Susan Blaney, Texas Children’s Hospital
Dr Stephen Chanock, National Institute of Health
Dr Nai Kong Cheung, Memorial Sloan-Kettering Cancer Center
Dr Margaret Foti, American Association of Cancer Research
Dr Maryam Fouladi, Cincinatti Children’s Medical Center
Dr Sharon Gardner, NYU Langone Medical Center
Dr Richard Gilbertson, St Jude Children’s Research Hospital
Dr Lee Helman, National Institute of Health
Dr Kim Kramer, Memorial Sloan-Kettering Cancer Center
Dr Crystal Mackall, National Institute of Health
Dr David Poplack, Texas Children’s Hospital
Dr Charles Sawyers, Memorial Sloan-Kettering Cancer Center
Dr Giselle Sholler, Van Andel Research Institute
Dr Stephen Spielberg, DIA
Dr Loice Swisher
Dr Michael Taylor, The Hospital for Sick Children (SickKids)

Institutions:

Covington & Burling LLP
Friends of Cancer Research
Gilbert & Wolfand, PC
National Organization for Rare Diseases
NYU Langone Medical Center
Patton Boggs LLP
Rare Disease Legislative Advocates
Rare Disease Legislative Advocates
Sidley & Austin, LLP
Sphere Consulting, LLC
Hogan Lovells
Zuckerman Spader

 

Individuals:
Mary Catherine Andrews
Carlos Angulos, Zuckerman Spader
Michael Berman, Duberstein Group
Inc
Sarah Caputo
Susie Block Casdin
Jim Courtovich, Sphere Consulting
Amy Cuniffe
Ellie Dehoney, Research!America
Jim Dougherty, Arcus Ventures
Jim and Patti Doyle, Business Forward
Cheryl Effron, Conjunction Fund
Michael Froman
Pete Goodloe, Sidley Austin
Brian Griffin, Duberstein Group Inc
Patrick Griffin, Peck Madigan Jones
Ken Levinson
Allan McArtor, Airbus, ALSAC
Lisa Paulsen, Stand Up to Cancer
Jamie Rubin
Phil Schiliro
Ellen Sigal, Friends of Cancer Research
Jeff Allen, Friends of Cancer Research
Jane Steinberg
Reid Stuntz, Stuntz Strategies
Laura Wang
Adrienne Westcott
Lynne Zydowsky
Deborah Pryce
Caroline Brown, Covington & Burling
Julia Jenkins, Rare Disease Legislative Advocates
Peter Goodloe, Sidley & Austin, LLP
Jen Bernstein, JC White Consulting
H.P Goldfield, Hogan Lovells, LLP
Griffin Williams
Amy Gilbert, Gilbert & Wolfand, PC
Laurine Toone, Gilbert & Wolfand, PC
Sung Poblete, Stand Up To Cancer
Kurt Campbell, The Asia Group LLC
Bianca Nunes
Grant Young, Covington & Burling
Shifra Srolovitz
Preeti Saigal
Lynne Zydowsky, Zydowsky Consultants and Alexandria Summit
Joel Marcus, Alexandria Summit
Diane Dorman
Bob Tepper, Third Rock Ventures
Julian Adams, Infinity Pharmaceuticals
Tony Coles, Yumanity

 

 

 

 

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