What We Do
KIDS V CANCER promotes pediatric cancer research by identifying structural impediments at key junctures in the research process – new drugs, tissue donation and access to funding – and developing strategies to address them.
Since Kids v Cancer was founded in 2009:
- We have started an autopsy tissue donation program for pediatric brain cancers which has already had significant impact on scientific discoveries.
- We have raised the profile of pediatric cancer issues by having September declared to be National Childhood Cancer Awareness Month for each of the past three years.
- We have worked with the FDA to pursue a new interpretation of the Best Pharmaceuticals for Children’s Act, a framework law governing pediatric cancer research, which will allow the FDA to accelerate the development of drugs potentially useful in treating pediatric cancer.
- We are working to identify areas of potential convergence between FDA and foreign regulatory practices that can help strengthen pediatric drug development.
- And most significantly, we were successful in authoring and championing for the Creating Hope Act, Section 908 of the FDA Safety and Innovation Act, which created a market-based incentive to spur pediatric cancer drug development. The Creating Hope Act went into effect on October 1st, and we are now working with the FDA, researchers and drug companies to ensure its full and effective implementation