There are some searches that Google cannot help with. You have a child who urgently needs an unapproved drug, it’s a matter read more →
Welcome to the Kids v Cancer blog
Sharing our thoughts and opinions is a big part of what we do. Advocacy is in essence an invitation to a discussion with the goal to persuade. Our work is more than organizing events and reporting accomplishments. It is a process of thinking, a search for logic and proof, a desire to uncover innovative solutions. Working for kids who have cancer is an emotional journey, a rollercoaster of incredible pain and hope. It is asphyxiating when another family loses a child. It is revitalizing when a compassionate use request is approved, when a new drug shows promise, when a teenager wants to advocate in memory of her baby sister.
Changing policies is a bumpy road with many blind turns. Let’s go for a ride.
One of the most challenging moments in the treatment of a child with cancer is when there is a promising drug in read more →
Should age matter when requests for compassionate use are considered? Are children less likely or more likely to be granted access to read more →
At a recent meeting on compassionate use, one of the attendees asked questions that were met with a prolonged silence in a read more →