One of the most challenging moments in the treatment of a child with cancer is when there is a promising drug in read more →
TO: MEMORANDUM FROM: Nancy Goodman RE: Notes on the PhRMA/BIO/Children’s Cause for Cancer Advocacy Conference of October 27, 2016 DATE: November 2, read more →
In a major development that could change the way cancer therapies are tested, a team of FDA medical officers has recommended that read more →
Dear friends: In this time of political uncertainty, we are once again facing the risk that the Creating Hope Act will expire read more →
Should age matter when requests for compassionate use are considered? Are children less likely or more likely to be granted access to read more →
Nancy Goodman, CEO, Kids v. Cancer from Eship@Cornell on Vimeo.
At a recent meeting on compassionate use, one of the attendees asked questions that were met with a prolonged silence in a read more →
Why are there so few trials for which children and young teens would qualify? Shouldn’t kids and teens also get a shot at exciting investigational drugs? read more →
Dear Commissioner Califf, Attached please find a letter from the pediatric cancer community requesting the establishment of a Pediatric Cancer Cluster. Thank read more →
We are proud to announce that on September 30, 2016 President Obama signed the Advancing Hope Act (S 1878) to extend the read more →
By Sarah Jane Tribble, Kaiser Health News In 2007, Congress created a voucher program that shaves months off of the Food and read more →
[The Augusta Chronicle] By Erin and Stephen Chance. Mom, why do I have cancer and other kids don’t?” Patrick was only 3 read more →
Since 2012, the Creating Hope Act pediatric priority review voucher program (pediatric PRV or Creating Hope Act) has created almost $1 billion read more →
Friends: In honor of tomorrow’s Congressional Childhood Cancer Caucus Summit, we want to update you on the work we are doing. EXTENSION read more →
Creating Hope Act and Tropical Disease Vouchers Issued and Exercised Please see the CHA PRV vouchers table.