About Us

Nancy Goodman

Founder and Executive Director

Nancy founded Kids v Cancer when her son, Jacob, died of medulloblastoma.

In 2012, Congress passed Kids v Cancer’s Creating Hope Act pediatric priority review voucher program into law as 21 USC 360ff.  Over $1 billion in priority review vouchers have been traded,  providing a significant incentive for pediatric rare disease drug development.   Vouchers are now trading at around $100 milion.

In 2017, Congress passed Kids v Cancer’s RACE for Children Act, requiring companies developing cancer targeted therapies to  also develop their drugs for children.

Kids v Cancer is now asking Congress to pass the Give Kids a Chance Act.

Nancy graduated from the University of Pennsylvania (BA), The Harvard Kennedy School of Government (MPP), and The Law School at the University of Chicago (JD).  She lives in Washington, D.C. with her husband Michael and her living children, Ben and Sarah.

To see a complete list of Nancy’s honors, please click here.  Nancy can be contacted via email at nancygoodman@kidsvcancer.org.

Jennifer Flynn

Outreach Director

Jenn is Director of Kids v Cancer’s  CLIMB THE HILL Day, Youth Board, social media and events.  A Masters in Social Work student, Jenn knew and loved Jacob from the time he was a very little boy until his death. Jenn can be contacted via email at jenn@kidsvcancer.org.

 

Elena Gerasimov

Director of Programs, Compassionate Use Navigator

Elena is Director of the Kids v Cancer theCompassionate Use Navigator program, which assists physicians and families apply for experimental drugs.  She authored the Saved Josh: The gears of a successful patient advocacy campaign, which documented the case of an 7-year-old boy’s struggle for a life-saving  experimental drug.  Elena holds an M.A. degree in journalism from American University and an MPH degree in maternal and child health from George Washington University.  Elena has over 20 years of experience, having worked as a science and business journalist, as an epidemiological researcher at the International Epidemiology Institute, and program manager at the Johns Hopkins University and GW Center for Integrative Medicine where she created a nonprofit clinic for underserved populations. Elena can be reached at elena@kidsvcancer.org.