Nancy Goodman
Founder and Executive Director
Nancy founded Kids v Cancer when her son, Jacob, died of medulloblastoma.
In 2012, Congress passed Kids v Cancer’s Creating Hope Act pediatric priority review voucher program into law as 21 USC 360ff. Over $1 billion in priority review vouchers have been traded, providing a significant incentive for pediatric rare disease drug development. In 2017, Congress passed Kids v Cancer’s RACE for Children Act, requiring companies developing cancer targeted therapies to also develop their drugs for children.
Nancy graduated from the University of Pennsylvania (BA), The Harvard Kennedy School of Government (MPP), and The Law School at the University of Chicago (JD). She lives in Washington, D.C. with her husband Michael and her living children, Ben and Sarah.
To see a complete list of Nancy’s honors, please click here. Nancy can be contacted via email at nancygoodman@kidsvcancer.org.
Jennifer Flynn
Outreach Director
Jenn leads Kids v Cancer’s social media effort and runs the Facebook pages and cause pages. Jenn also runs the Youth program, coordinates volunteer efforts, and facilitates development events for Kids v Cancer. A Masters in Social Work student, Jenn knew and loved Jacob from the time he was a very little boy until his death. Jenn can be contacted via email at jenn@kidsvcancer.org.
Elena Gerasimov
Director of Programs, Compassionate Use Navigator
Elena built and directs the Compassionate Use Navigator program, which assists physicians and families apply for experimental drugs. She authored the Saved Josh: The gears of a successful patient advocacy campaign, which documented the case of an 7-year-old boy’s struggle for a life-saving experimental drug. Elena holds an M.A. degree in journalism from American University and an MPH degree in maternal and child health from George Washington University. Elena has over 20 years of experience, having worked as a science and business journalist, as an epidemiological researcher at the International Epidemiology Institute, and program manager at the Johns Hopkins University and GW Center for Integrative Medicine where she created a nonprofit clinic for underserved populations. Elena can be reached at elena@kidsvcancer.org.
Leika Uzcategui
Business Manager
Leika is Kids v Cancer’s business manager. Leika has a decade of experience managing financial, sales and customer relations at an architecture and general contracting company. Leika can be contacted at leika@kidsvcancer.org.
Phoebe Smith
Graphic Designer, Principal at Hunt Smith Design
Phoebe works with Kids v Cancer and other clients to design print and electronic communications materials. She holds a BA in English Literature and an MFA in Graphic Design. She’s worked at a small handful of design firms and has been running her own shop since 2001. She keeps good company with other Wonder Women (like those at Kids v Cancer and those at Hunt Smith Design), and her business is a certified Woman-Owned Small Business (WOSB) and Woman Business Enterprise (WBE). She can be reached at phoebe@huntsmithdesign.com.
Thank you for your support to our partners:
withpurpose
Parents Advisory Board:
Kim Prokop, Chair of Parents Advisory Board, mother of Hannah, www.hannahpro.blogspot.com
Kids v Cancer gratefully acknowledges the efforts of others
Physicians:
Dr Peter Adamson, The Children’s Hospital of Philadelphia
Dr Susan Blaney, Texas Children’s Hospital
Dr Stephen Chanock, National Institute of Health
Dr Nai Kong Cheung, Memorial Sloan-Kettering Cancer Center
Dr Margaret Foti, American Association of Cancer Research
Dr Maryam Fouladi, Cincinatti Children’s Medical Center
Dr Sharon Gardner, NYU Langone Medical Center
Dr Richard Gilbertson, St Jude Children’s Research Hospital
Dr Lee Helman, National Institute of Health
Dr Kim Kramer, Memorial Sloan-Kettering Cancer Center
Dr Crystal Mackall, National Institute of Health
Dr David Poplack, Texas Children’s Hospital
Dr Charles Sawyers, Memorial Sloan-Kettering Cancer Center
Dr Giselle Sholler, Van Andel Research Institute
Dr Stephen Spielberg, DIA
Dr Loice Swisher
Dr Michael Taylor, The Hospital for Sick Children (SickKids)
Institutions:
Covington & Burling LLP
Friends of Cancer Research
Gilbert & Wolfand, PC
National Organization for Rare Diseases
NYU Langone Medical Center
Patton Boggs LLP
Rare Disease Legislative Advocates
Rare Disease Legislative Advocates
Sidley & Austin, LLP
Sphere Consulting, LLC
Hogan Lovells
Zuckerman Spader
Individuals:
Mary Catherine Andrews
Carlos Angulos, Zuckerman Spader
Erin Benson, With Purpose
Michael Berman, Duberstein Group
Inc
Sarah Caputo
Susie Block Casdin
Jim Courtovich, Sphere Consulting
Amy Cuniffe
Ellie Dehoney, Research!America
Jim Dougherty, Arcus Ventures
Jim and Patti Doyle, Business Forward
Cheryl Effron, Conjunction Fund
Michael Froman
Pete Goodloe, Sidley Austin
Brian Griffin, Duberstein Group Inc
Patrick Griffin, Peck Madigan Jones
Ken Levinson
Allan McArtor, Airbus, ALSAC
Lisa Paulsen, Stand Up to Cancer
Jamie Rubin
Phil Schiliro
Ellen Sigal, Friends of Cancer Research
Jeff Allen, Friends of Cancer Research
Jane Steinberg
Reid Stuntz, Stuntz Strategies
Laura Wang
Adrienne Westcott
Lynne Zydowsky
Deborah Pryce
Caroline Brown, Covington & Burling
Julia Jenkins, Rare Disease Legislative Advocates
Peter Goodloe, Sidley & Austin, LLP
Jen Bernstein, JC White Consulting
H.P Goldfield, Hogan Lovells, LLP
Griffin Williams
Amy Gilbert, Gilbert & Wolfand, PC
Laurine Toone, Gilbert & Wolfand, PC
Sung Poblete, Stand Up To Cancer
Kurt Campbell, The Asia Group LLC
Bianca Nunes
Grant Young, Covington & Burling
Shifra Srolovitz
Preeti Saigal
Lynne Zydowsky, Zydowsky Consultants and Alexandria Summit
Joel Marcus, Alexandria Summit
Diane Dorman
Bob Tepper, Third Rock Ventures
Julian Adams, Infinity Pharmaceuticals
Tony Coles, Yumanity