Kids v Cancer’s Nancy Goodman and Smashing Walnuts’ Ellyn Miller are on a crusade to fix the injustice that they say many children with cancer face, a lack of adequate investment in studying cancer specific to them and a lack of development of effective and less toxic drugs and cures. more→
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(Blog) Distinguished Public Service Award for Nancy Goodman
Nancy Goodman, the executive director and founder of Kids v Cancer, received the Distinguished Public Service award in recognition of her outstanding leadership in cancer policy and advocacy at the 2019 annual meeting of AACR. more→
(Wall Street Journal ) For Children with Cancer, Hope for New Treatments
The RACE for Children Act, requiring pharmaceuticals companies to test cancer drugs on children as well as adults, is raising hopes of more therapies. more→
(AACR – video) 2018 AACR Meeting Presentation on RACE Act by Nancy Goodman
On April 17th, Nancy Goodman made a presentation on the RACE for Children ACT at the 2018 annual meeting of the American more→
(New York Times) Why Can’t Dying Patients Get the Drugs They Want?
Right to Try legislation “is not going to fix the problem because there are still a lot of reasons why the companies will choose not to share their drugs,” says Nancy Goodman. more→
(This week in pediatric oncology – audio) Interview with Nancy Goodman
Dr. Timothy Cripe from Nationwide Children’s Hospital talks with Nancy Goodman, Founder and Executive Director of Kids v. Cancer, about accomplishments and her hopes for the future. more→
(Atlantic Forum – video) Eyes on immunotherapy: Nancy Goodman
A video on how Kids v Cancer is creating incentives and requirements for companies to undertake pediatric studies. more→
(Science) Children with cancer get more access to experimental drugs
The Research to Accelerate Cures and Equity for Children (RACE) Act will close loopholes in U.S. drug approval guidelines that companies have exploited to avoid enrolling children in clinical cancer research. more→
(Life Science Daily) RACE for Children Act seeks to boost childhood cancer research
Current law does not reflect advances in cancer drug development because these therapies have been under-studied in pediatric cancer. more→
(CNBC-video) Kids v. Cancer advocates for RACE for Children Act
Nancy Goodman, Kids v. Cancer founder, discusses her push for the development of pediatric cancer drugs. With CNBC’s Meg Tirrell.
(STAT News-audio) The death of a child and a golden ticket for drug makers
How did every parent’s worst nightmare — the death of a child — spur the creation of an incentive system to turn making drugs for childhood cancer from a high-risk, low-reward gamble to a bet a company might make? more→
(Fast Company) Kids v Cancer a 10 most innovative not-for-profits for 2016
https://www.fastcompany.com/most-innovative-companies/2016/sectors/not-for-profit
(PBS News Hour) How one drug company fast-tracked the FDA’s review process
A voucher program shaves months off of the FDA’s review process for drug development that targets rare pediatric diseases. more→
Nature supports RACE for Children Act
Kids v Cancer welcomes NATURE’s editorial in support of the RACE for Children Act to champion the development of promising cancer drugs for children. more→
(Nature Magazine) Fairer way to distribute last-ditch drugs gets real-world trial (Nature Magazine)
Drug companies’ compassionate policies hard to decipher, and experts are testing what they hope is a fairer system to distribute drugs. more→