The inspirational story of 10-year-old Autumn Schierling’s fight with neurofibromatosis and the successful development of selumetinib for her condition offer a timely example of how a law can help children with rare diseases. more→
OUR OP-EDS, TALKS, SPEECHES
(Congressional testimony by Nancy Goodman) Creating Hope: In Support of the Creating Hope Reauthorization Act, Making the Rare Pediatric Disease Priority Review Voucher Program Permanent
Testimony before the Health Subcommittee of the U.S. House of Representatives Energy and
Commerce Committee, July 29, 2020. Nancy Goodman, Founder of Kids v Cancer more→
(Atlantic Forum-video) Mapping Cancer Disparities panel at the Atlantic’s People v. Cancer forum
Watch Kids v Cancer’s Executive Director Nancy Goodman speak about the need to lower kids’ age of eligibility for clinical trials. more→
(AACR – video) 2018 AACR Meeting Presentation on RACE Act by Nancy Goodman
On April 17th, Nancy Goodman made a presentation on the RACE for Children ACT at the 2018 annual meeting of the American more→
(This week in pediatric oncology – audio) Interview with Nancy Goodman
Dr. Timothy Cripe from Nationwide Children’s Hospital talks with Nancy Goodman, Founder and Executive Director of Kids v. Cancer, about accomplishments and her hopes for the future. more→
(Yale Law School – video) Is the Federal government a productive partner in cancer policy?
Watch a 9 min. video: Nancy Goodman speaks about creating incentives for the industry to develop cancer drugs for children at the joint conference of the Yale Law School, Smilow Cancer Hospital and Yale Cancer Center. more→
(Atlantic Forum – video) Eyes on immunotherapy: Nancy Goodman
A video on how Kids v Cancer is creating incentives and requirements for companies to undertake pediatric studies. more→
(The Cancer Letter) How the RACE for Children Act Will Get Drugs to Kids with Cancer, Nancy Goodman)
Taken together, the RACE for Children Act and the Pediatric PRV program change the landscape of pediatric cancer research. more→
(Morning Consult) Don’t leave them waiting: How to bring new cancer drugs to kids, by Elena Gerasimov)
The RACE Act is needed because most kids with cancer are treated with medicines from the time when my mom was young. more→
(Cornell Entrepreneur Summit – video) Nancy Goodman speaks at Summit 2016 Entrepreneurship at Cornell
(The Cancer Letter) Too many PD-1 trials for adults, too few for children, Nancy Goodman
Why are there so few trials for which children and young teens would qualify? Shouldn’t kids and teens also get a shot at exciting investigational drugs? more→
(KVC publication) Letter to Commissioner Califf requesting the establishment of a Pediatric Cancer Cluster
A letter to the FDA Commissioner from the pediatric cancer community requesting the establishment of a Pediatric Cancer Cluster to further promote international scientific exchange and to harmonize global pediatric cancer drug development. more→
(AACR abstract) Compassionate Use Navigator addresses challenges and facilitates access to investigational drugs for pediatric oncologists (Proceedings: AACR 107th Annual Meeting 2016)
Proceedings: AACR 107th Annual Meeting 2016; April 16-20, 2016; New Orleans, LA Elena Gerasimov, Lindy Zhang, Scott Moerdler, Michael Roth, Nancy Goodman more→
(Committee on Homeland Security and Governmental Affairs) Testimony of Nancy Goodman
On February 25, 2016 Nancy Goodman testified on how to connect patients to new and potential life-saving treatments. more→
( Washington Post) Letter to the Editor by Nancy Goodman
Nancy Goodman advocates for pain medicines for seriously ill children. more→