The inspirational story of 10-year-old Autumn Schierling’s fight with neurofibromatosis and the successful development of selumetinib for her condition offer a timely example of how a law can help children with rare diseases. more→
OUR OP-EDS, TALKS, SPEECHES
Creating Hope: In Support of the Creating Hope Reauthorization Act, Making the Rare Pediatric Disease Priority Review Voucher Program Permanent (Testimony by Nancy Goodman)
Testimony before the Health Subcommittee of the U.S. House of Representatives Energy and
Commerce Committee, July 29, 2020. Nancy Goodman, Founder of Kids v Cancer more→
Magical Math at the NCI (Nancy Goodman, The Cancer Letter)
In this guest editorial, KVC’s executive director Nancy Goodman analyzes President Trump’s promise of $500 million in additional pediatric cancer funding over the next 10 years and calls for getting the NCI the increase in funding it deserves. more→
Needed: A fully funded data federation for pediatric cancer with deep genomic sequencing and clinical records (The Cancer Letter, by Nancy Goodman)
Will the president and his administration invest the political capital necessary to make the additional commitment of resources to pediatric cancer a reality? more→
Mapping Cancer Disparities panel at the Atlantic’s People v. Cancer forum
Watch Kids v Cancer’s Executive Director Nancy Goodman speak about the need to lower kids’ age of eligibility for clinical trials. more→
2018 AACR Meeting Presentation by Nancy Goodman
On April 17th, Nancy Goodman made a presentation on the RACE for Children ACT at the 2018 annual meeting of the American more→
This week in pediatric oncology – Interview with Nancy Goodman (audio)
Dr. Timothy Cripe from Nationwide Children’s Hospital talks with Nancy Goodman, Founder and Executive Director of Kids v. Cancer, about accomplishments and her hopes for the future. more→
Eyes on immunotherapy: Nancy Goodman speaks at the Atlantic Forum Children & Cancer
A video on how Kids v Cancer is creating incentives and requirements for companies to undertake pediatric studies. more→
How the RACE for Children Act will get drugs to kids with cancer (The Cancer Letter, by Nancy Goodman)
Taken together, the RACE for Children Act and the Pediatric PRV program change the landscape of pediatric cancer research. more→
Don’t leave them waiting: How to bring new cancer drugs to kids (Morning Consult, by Elena Gerasimov)
The RACE Act is needed because most kids with cancer are treated with medicines from the time when my mom was young. more→
Nancy Goodman speaks at Summit 2016 Entrepreneurship at Cornell
Too many PD-1 trials for adults, too few for children (The Cancer Letter, by Nancy Goodman)
Why are there so few trials for which children and young teens would qualify? Shouldn’t kids and teens also get a shot at exciting investigational drugs? more→
Letter to Commissioner Califf requesting the establishment of a Pediatric Cancer Cluster
A letter to the FDA Commissioner from the pediatric cancer community requesting the establishment of a Pediatric Cancer Cluster to further promote international scientific exchange and to harmonize global pediatric cancer drug development. more→
Saved Josh: The gears of a successful patient advocacy campaign (Case study, by Elena Gerasimov)
Read a detailed account of a case of a 7-year-old boy whose request to be treated with an experimental drug started the nationwide conversation about compassionate use. more→
Testimony of Nancy Goodman before the Committee on Homeland Security and Governmental Affairs
On February 25, 2016 Nancy Goodman testified on how to connect patients to new and potential life-saving treatments. more→