Download the directory of Pediatric Cancer Research Consortia.
OUR PUBLICATIONS
(KVC Publication) Pediatric Cancer Legislative Yearbook 2022
Download the Legislative Yearbook 2022 and learn about legislative agenda of childhood cancer community. Updated December 2021.
(Nancy Goodman) Lift Every Voice and Sing: Working for Equity for Children with Cancer. Published in A New Deal for Cancer. Lessons from a 50 Year War.
Nancy Goodman wrote a chapter in the book presenting opinions of a constellation of experts—leading cancer doctors, policymakers, cutting-edge researchers, national advocates, and more—on the legacy and the shortcomings from the 50-year war on cancer and look ahead to the future. more→
(Pizzo & Poplack’s Pediatric Oncology, 8th Edition) The Other Side of the Bed: What Providers Can Learn from Listening to Patients and Their Families
Co-authored by patient advocates and parents, this book chapter educates healthcare providers about what is really important to kids with cancer and their families during and post-treatment. more→
(ASCO Educational Book) Before It’s Too Late: Multistakeholder Perspectives on Compassionate Access to Investigational Drugs for Pediatric Patients With Cancer
Patients and their families, physicians, drug companies, and regulatory agencies have common goals: to find effective therapies for life-threatening conditions. In oncology, the lines between clinical research and treatment are often blurred. more→
(Journal of Global Oncology) Global Development of Anticancer Therapies for Rare Cancers, Pediatric Cancers, and Molecular Subtypes of Common Cancers
A lack of uniform standards in both regulatory approval for marketing and reimbursement for approved agents across countries may make the newly developed agent either unavailable or inaccessible to patients in certain countries or regions, even if patients from those countries or regions participated in the clinical research. more→
(Pediatric Blood & Cancer) Physician perspectives on compassionate use in pediatric oncology
Full text Scott Moerdler, Lindy Zhang, Elena Gerasimov, Chong Zhu, Tamar Wolinsky, Michael Roth, Nancy Goodman, Daniel A. Weiser First published: 08 November 2018 Pediatr Blood Cancer. 2018 Nov more→
(KVC publication) Pediatric oncologists’ experiences with compassionate use. Abstract at 2018 ASCO annual meeting
The lack of knowledge and paucity of support in the application process are immediate actionable barriers to wider utilization of compassionate use in pediatric oncology. more→
(KVC Publication) RACE for Children Act Thank You Book Volume 3
Download the RACE for Children Act Thank You Book, Vol. 3 Or cut and paste this URL: https://www.kidsvcancer.org/wp-content/uploads/2018/01/Thank-you-book-2017-single-page.pdf
(KVC publication) Saved Josh: The gears of a successful patient advocacy campaign, Elena Gerasimov)
Read a detailed account of a case of a 7-year-old boy whose request to be treated with an experimental drug started the nationwide conversation about compassionate use. more→
(KVC Publications-photos) Changing the Landscape of Pediatric Cancer Thank You Book Volume 2
Kids fighting cancer are on a long and grueling journey. We thank you for fighting for these children. Read their stories in our Thank You Book, Vol. 2. more→
(KVC Publication) Creating Hope Act Thank You Book Volume 1
Download the Creating Hope Thank You Book, Vol. 1. Or cut and paste this URL : https://www.kidsvcancer.org/wp-content/uploads/2018/01/Thank-you-book-Vol-1-single-page.pdf