Download the Legislative Yearbook 2022 and learn about legislative agenda of childhood cancer community. Updated December 2021.
OUR PUBLICATIONS
(KVC Publication) Pediatric Cancer Legislative Yearbook 2021
Download the Legislative Yearbook 2021 and learn about legislative agenda of childhood cancer community. Updated November 2020.
(ASCO Educational Book) Before It’s Too Late: Multistakeholder Perspectives on Compassionate Access to Investigational Drugs for Pediatric Patients With Cancer
Patients and their families, physicians, drug companies, and regulatory agencies have common goals: to find effective therapies for life-threatening conditions. In oncology, the lines between clinical research and treatment are often blurred. more→
(KVC Publication) Pediatric Cancer Research Consortia 2019
Download the directory of Pediatric Cancer Research Consortia.
(Pediatric Blood & Cancer) Physician perspectives on compassionate use in pediatric oncology
Full text Scott Moerdler, Lindy Zhang, Elena Gerasimov, Chong Zhu, Tamar Wolinsky, Michael Roth, Nancy Goodman, Daniel A. Weiser First published: 08 November 2018 Pediatr Blood Cancer. 2018 Nov more→
(KVC publication) abstract at 2018 ASCO annual meeting: Pediatric oncologists’ experiences with compassionate use
The lack of knowledge and paucity of support in the application process are immediate actionable barriers to wider utilization of compassionate use in pediatric oncology. more→
(KVC Publication) RACE for Children Act Thank You Book Volume 3
Download the RACE for Children Act Thank You Book, Vol. 3 Or cut and paste this URL: https://www.kidsvcancer.org/wp-content/uploads/2018/01/Thank-you-book-2017-single-page.pdf
(KVC publication) Saved Josh: The gears of a successful patient advocacy campaign, Elena Gerasimov)
Read a detailed account of a case of a 7-year-old boy whose request to be treated with an experimental drug started the nationwide conversation about compassionate use. more→
(KVC Publications-photos) Changing the Landscape of Pediatric Cancer Thank You Book Volume 2
Kids fighting cancer are on a long and grueling journey. We thank you for fighting for these children. Read their stories in our Thank You Book, Vol. 2. more→
(KVC Publication) Creating Hope Act Thank You Book Volume 1
Download the Creating Hope Thank You Book, Vol. 1. Or cut and paste this URL : https://www.kidsvcancer.org/wp-content/uploads/2018/01/Thank-you-book-Vol-1-single-page.pdf