Download the Legislative Yearbook 2021 and learn about legislative agenda of childhood cancer community. Updated November 2020.
OUR PUBLICATIONS
Before It’s Too Late: Multistakeholder Perspectives on Compassionate Access to Investigational Drugs for Pediatric Patients With Cancer (ASCO Educational Book)
Patients and their families, physicians, drug companies, and regulatory agencies have common goals: to find effective therapies for life-threatening conditions. In oncology, the lines between clinical research and treatment are often blurred. more→
Pediatric Cancer Legislative Yearbook 2020
Download the Legislative Yearbook 2020 and learn about legislative agenda of childhood cancer community. Updated September 2019.
Magical Math at the NCI (Nancy Goodman, The Cancer Letter)
In this guest editorial, KVC’s executive director Nancy Goodman analyzes President Trump’s promise of $500 million in additional pediatric cancer funding over the next 10 years and calls for getting the NCI the increase in funding it deserves. more→
Needed: A fully funded data federation for pediatric cancer with deep genomic sequencing and clinical records (The Cancer Letter, by Nancy Goodman)
Will the president and his administration invest the political capital necessary to make the additional commitment of resources to pediatric cancer a reality? more→
Pediatric Cancer Research Consortia 2019
Download the directory of Pediatric Cancer Research Consortia.
Physician perspectives on compassionate use in pediatric oncology (Pediatric Blood & Cancer)
Full text Scott Moerdler, Lindy Zhang, Elena Gerasimov, Chong Zhu, Tamar Wolinsky, Michael Roth, Nancy Goodman, Daniel A. Weiser First published: 08 November 2018 Pediatr Blood Cancer. 2018 Nov more→
Pediatric Cancer Legislative Yearbook 2019
Download a PDF summary of all pediatric cancer-related legislative initiatives, including 2018 accomplishments and legislative agenda for 2019. more→
Our abstract at 2018 ASCO annual meeting: Pediatric oncologists’ experiences with compassionate use
The lack of knowledge and paucity of support in the application process are immediate actionable barriers to wider utilization of compassionate use in pediatric oncology. more→
Pediatric Cancer Legislative Yearbook 2017
Download a PDF summary of all pediatric cancer-related legislative initiatives, including 2017 accomplishments and future legislative agenda for 2018. more→
Kids v Cancer End of Year Letter 2017
2017 has been a truly remarkable and exciting year for Kids v Cancer. more→
How the RACE for Children Act will get drugs to kids with cancer (The Cancer Letter, by Nancy Goodman)
Taken together, the RACE for Children Act and the Pediatric PRV program change the landscape of pediatric cancer research. more→
Don’t leave them waiting: How to bring new cancer drugs to kids (Morning Consult, by Elena Gerasimov)
The RACE Act is needed because most kids with cancer are treated with medicines from the time when my mom was young. more→
Kids v Cancer End of Year Letter 2016
KVC 2016 End of Year Letter
Kids v Cancer Pediatric Cancer Legislative Yearbook 2016
The Pediatric Cancer Legislative Yearbook 2016 summarizes the achievements of pediatric cancer advocacy organizations and outlines next steps for 2017. more→