The RACE Act is needed because most kids with cancer are treated with medicines from the time when my mom was young. more→
RACE FOR CHILDREN ACT NEWS
Rubio and Bennet: RACE for Children Act will help kids with cancer (Tallahassee Democrat)
If the Senate passes this act, necessary studies will be conducted to provide physicians with more information for treating children with cancer. more→
FDA approves first treatment for solid tumors based on molecular target (FDA News Release)
The approval of a cancer treatment based on a common biomarker is a very big first for the cancer community, providing a scientific rationale behind the goal of the RACE for Children Act. more→
Thank Senator Michael Bennet
Senator Michael Bennet gave a moving colloquy, asking that the Senate support the RACE for Children Act. more→
Advocates for child cancer patients press for faster drug approvals (USA Today)
Advocates for child cancer patients hope a key congressional panel takes an important step in the decades-long fight to speed up development of pediatric oncology drugs. more→
Pediatric cancers: New bill seeks to close clinical trial requirement loopholes (Regulatory Affairs Professional Society)
The bill will end the current exemption for companies from obligations related to undertaking PREA pediatric study plans. more→
RACE for Children Act seeks to boost childhood cancer research (Life Science Daily)
Current law does not reflect advances in cancer drug development because these therapies have been under-studied in pediatric cancer. more→
Kids v. Cancer advocates for RACE for Children Act (CNBC)
Nancy Goodman, Kids v. Cancer founder, discusses her push for the development of pediatric cancer drugs. With CNBC’s Meg Tirrell.
Butterfield backs bill to boost child cancer research (The Wilson Times)
Rep. G.K. Butterfield has joined a bipartisan group of senators and representatives to reintroduce RACE for Children Act. more→
Congress reintroduces RACE for Children Act (KvC Newsletter)
Addressing the innovation gap in children’s cancer research caused in part by high-priced cancer drugs. more→
Kids v Cancer Pediatric Cancer Legislative Yearbook 2016
The Pediatric Cancer Legislative Yearbook 2016 summarizes the achievements of pediatric cancer advocacy organizations and outlines next steps for 2017. more→
New bill would open important avenues of research for childhood cancer (The Augusta Chronicle)
When you’re a parent of a child with cancer, you do everything possible to chase down that cure. more→
Nature supports RACE for Children Act
Kids v Cancer welcomes NATURE’s editorial in support of the RACE for Children Act to champion the development of promising cancer drugs for children. more→
Congress introduces RACE for Children Act (KvC Newsletter)
RACE for Children Act will give children with cancer access to the most promising treatments. more→
Laws need to catch up to the science (The Cancer Letter, by Nancy Goodman)
Kids with cancer are the last, not the first, to get on trials of promising new drugs. more→