• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer

Kids v Cancer

A PEDIATRIC CANCER THINK TANK

DONATE
  • GIVE KIDS A CHANCE act
  • RACE for Children Act
  • Creating Hope Act Pediatric Vouchers
  • CLIMB THE HILL
    • What is Climb the Hill Day?
    • Climb the Hill Youth Advocacy Day Sign Up
    • Video and photo gallery
    • (video) Climb the Hill Youth Advocacy Day — Why Do We Do It?
  • Compassionate Use Navigator
    • Information for Families
    • Information for Physicians
  • Who We Are
    • About Us
    • Mission and Impact
    • Contact
  • News & publications
    • Kids v Cancer in the News
    • Kids v Cancer Publications

Jacob

My son, Jacob, was a beautiful, happy, kind, funny, serious, inquisitive, articulate, contemplative, exuberant, talkative boy. He loved all sports, playing keyboards and vocals in rock bands, spending time with his little brother, Ben. He wanted to be a good kid. When Jacob was 8, he was diagnosed with medulloblastoma. Jacob’s disease was unresponsive to treatment and burdened him with terrible impairments. Jacob struggled with brain cancer for two years.  Finally, on January 16, 2009, at age 10, he lost that struggle.One step we took that has brought us great comfort was to request an autopsy tissue donation.  We hope that through this donation, we might one day prevent another child from suffering Jacob’s fate. Tumor tissue is scarce and much research for pediatric brain cancer is delayed or never undertaken because there isn’t enough tissue available. Tissue donation is one of the few positive steps we can take during this trying time. And it is a contribution that only we, the parents of children with brain cancer, can make.

Jacob’s tissue was sent to several pediatric cancer researchers.  We are happy to report that even this one step has promoted scientific understanding of pediatric brain cancer.  One research team reported a new observation as a result of a genetic analysis of Jacob’s primary and metastasized tumor tissue. Another research team was successful in developing the first xenograft autopsy tissue mouse model from autopsy materials.

Kids v Cancer is working to make autopsy tissue donation more common, so that researchers can obtain the tissue they desperately need. We invite you to use this website to learn more about autopsy tissue donation.

Still with hope,
Nancy Goodman
Founder and Executive Director
Kids v Cancer
www.kidsvcancer.org
www.caringbridge.org/visit/jacobfroman
www.facebook.com/kidsvcancer

Donation Stories
Jacob
• Aleena • Dylan • Georgia • Faith • Hope • Jennifer • Zachary

 

  • Facebook
  • Twitter

DONATE SUBSCRIBE

Kids v Cancer · 3602 Newark Street NW · Washington D.C. 20016 · 646-361-3590 · contact

© 2023 Kids v Cancer · All Rights Reserved a 501(c)(3) nonprofit organization · EIN 27-1427784 · Privacy Policy · Terms of Use · Sitemap