The development of pediatric cancer drugs is vastly underfunded compared with that for adults, but legislation can correct market failures. Everyone cares more→
(Help and Hope Happen Here – podcast) Interview with Nancy Goodman 11/18/2021
LISTEN TO THE PODCAST HERE! (Or cut and paste this URL: https://www.buzzsprout.com/1218635/9572048). Nancy Goodman will talk about KIDS V CANCER, which she more→
(The Laura Coates Show, SiriusXM – podcast) Interview with Nancy Goodman
LISTEN TO THE PODCAST HERE! (Or cut and paste this URL: https://www.siriusxm.com/clips/social/embed/clip/ffb27e63-5124-283a-3d3f-01aaa6447d7a/6cfda069-bd4c-4856-97f8-0bb3e65badf6).
(CNN) Mothers Turn Grief into Action in the Fight against Childhood Cancer
Kids v Cancer’s Nancy Goodman and Smashing Walnuts’ Ellyn Miller are on a crusade to fix the injustice that they say many children with cancer face, a lack of adequate investment in studying cancer specific to them and a lack of development of effective and less toxic drugs and cures. more→
(STAT Readout Loud – podcast) Episode 149: Nancy Goodman on Covid vaccines for kids
LISTEN TO THE PODCAST HERE! (Or cut and paste this URL: https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5zb3VuZGNsb3VkLmNvbS91c2Vycy9zb3VuZGNsb3VkOnVzZXJzOjQwMDQzODAyOS9zb3VuZHMucnNz/episode/dGFnOnNvdW5kY2xvdWQsMjAxMDp0cmFja3MvOTkzMTcxMjcx?hl=en&ved=2ahUKEwjU5buQhaX0AhWSVTABHZPRBmQQjrkEegQIAhAF&ep=6). Nancy Goodman discusses why she believes Covid-19 vaccine trials need more→
(Blog) New Cancer Drug, Three More for Rare Pediatric Diseases Approved, and a Voucher Sells for $95 Million
A new drug for neuroblastoma and three more drugs for rare pediatric diseases approved during Thanksgiving week, earning the vouchers under the Creating Hope Act. more→
(Congressional testimony by Nancy Goodman) Creating Hope: In Support of the Creating Hope Reauthorization Act, Making the Rare Pediatric Disease Priority Review Voucher Program Permanent
Testimony before the Health Subcommittee of the U.S. House of Representatives Energy and
Commerce Committee, July 29, 2020. Nancy Goodman, Founder of Kids v Cancer more→
(Legal Document) FDA Publishes RACE for Children Act Draft Guidance for Industry
Publication of the guidance is the next step in implementation of the RACE for Children Act, which addresses drug development for rare pediatric cancers. It includes lists of molecular targets for which pediatric studies are required or waived. more→
(Blog) AACR Distinguished Public Service Award for Nancy Goodman
Nancy Goodman, the executive director and founder of Kids v Cancer, received the Distinguished Public Service award in recognition of her outstanding leadership in cancer policy and advocacy at the 2019 annual meeting of AACR. more→
(Wall Street Journal ) For Children with Cancer, Hope for New Treatments
The RACE for Children Act, requiring pharmaceuticals companies to test cancer drugs on children as well as adults, is raising hopes of more therapies. more→
(Blog) Make compassionate use program easy to navigate
The study we co-authored identified knowledge gaps and misperceptions about the compassionate use application process among pediatric oncologists and echoes new FDA’s Expanded Access Program Report. more→
(Blog) Right to Try does not make compassionate use access easier
The new law doesn’t change a fundamental reality about compassionate use: the biggest hurdle is persuading a drug company to agree to provide access. more→
(New York Times) Why Can’t Dying Patients Get the Drugs They Want?
Right to Try legislation “is not going to fix the problem because there are still a lot of reasons why the companies will choose not to share their drugs,” says Nancy Goodman. more→
(Yale Law School – video) Is the Federal government a productive partner in cancer policy?
Watch a 9 min. video: Nancy Goodman speaks about creating incentives for the industry to develop cancer drugs for children at the joint conference of the Yale Law School, Smilow Cancer Hospital and Yale Cancer Center. more→
(Atlantic Forum – video) Eyes on immunotherapy: Nancy Goodman
A video on how Kids v Cancer is creating incentives and requirements for companies to undertake pediatric studies. more→