The RACE Act is needed because most kids with cancer are treated with medicines from the time when my mom was young. more→
RACE for Children Act seeks to boost childhood cancer research (Life Science Daily)
Current law does not reflect advances in cancer drug development because these therapies have been under-studied in pediatric cancer. more→
Kids v. Cancer advocates for RACE for Children Act (CNBC)
Nancy Goodman, Kids v. Cancer founder, discusses her push for the development of pediatric cancer drugs. With CNBC’s Meg Tirrell.
Kids v Cancer Pediatric Cancer Legislative Yearbook 2016
The Pediatric Cancer Legislative Yearbook 2016 summarizes the achievements of pediatric cancer advocacy organizations and outlines next steps for 2017. more→
Enrolling adolescents in disease/target-appropriate adult oncology clinical trials of investigational agents (Clinical Cancer Research)
The paper recommends the inclusion of adolescents (ages 12-17) in disease- and target-appropriate adult oncology trials. more→
Creating Hope Act reauthorized in 21st Century Cures (KVC Newsletter)
On December 13, 2016, President Obama signed into law the 21st Century Cures Act, reauthorizing the Creating Hope Act until 2020. more→
Too many PD-1 trials for adults, too few for children (The Cancer Letter, by Nancy Goodman)
Why are there so few trials for which children and young teens would qualify? Shouldn’t kids and teens also get a shot at exciting investigational drugs? more→
How one drug company fast-tracked the FDA’s review process (PBS News Hour)
A voucher program shaves months off of the FDA’s review process for drug development that targets rare pediatric diseases. more→
Nature supports RACE for Children Act
Kids v Cancer welcomes NATURE’s editorial in support of the RACE for Children Act to champion the development of promising cancer drugs for children. more→
Fairer way to distribute last-ditch drugs gets real-world trial (Nature Magazine)
Drug companies’ compassionate policies hard to decipher, and experts are testing what they hope is a fairer system to distribute drugs. more→
KVC launches the Compassionate Use Navigator (KvC Newsletter)
We are proud to announce the launch of the Compassionate Use Navigator, a new service that provides assistance getting access to drugs on a compassionate use basis. more→
Kids v Cancer is #4 of Fast Company’s Top 10 most innovative companies in not-for-profit (KvC Press Release)
Fast Company praised Kids v Cancer for accelerating the discovery of pediatric cancer treatments. more→
Kids v Cancer wins Peter Drucker award for nonprofit innovation (KvC Press Release)
Kids v Cancer was awarded the 2015 Peter F. Drucker Award for Nonprofit Innovation for its role in the 2012 Creating Hope Act. more→
Laws need to catch up to the science (The Cancer Letter, by Nancy Goodman)
Kids with cancer are the last, not the first, to get on trials of promising new drugs. more→
Hope for children’s rare drug approval process (USA Today)
Advocates for children with rare diseases are watching closely a congressional effort to streamline the nation’s drug approval process. more→