Thank you for your support and words of encouragement. I want to share with you the work we’ve been doing at Kids v Cancer.
This September, President Obama declared September, 2011 National Childhood Cancer Awareness Month. This is a wonderful step towards greater awareness of pediatric cancer issues.
In celebration of National Childhood Cancer Awareness Month, I testified at the Congressional Pediatric Cancer Caucus’ Second Annual Childhood Cancer Summit. I spoke on the need to create incentives for the development of life saving drugs for children.
Also in September, the Creating Hope Act, which we have been championing,
was introduced in the House. The Creating Hope Act provides market incentives for drug development for pediatric cancers and other pediatric rare diseases. With bipartisan support, no appropriations needed and 64 sponsors as of today, the Creating Hope Act has a good chance of passage. Please take 2 minutes to write your Senators and Representatives in support of the Creating Hope Act.
On a personal note, it’s remarkable to me that Jacob has been gone almost three years. There are so many reminders of him. Brother Ben is now in fourth grade. His rock band gigs and victories on the soccer field are a stark contrast to Jacob’s treatment-filled fourth grade year. Sarah’s baby explorations – she is now one and is trying to stand on shaky legs — have brought back many happy memories of Jacob as a baby. We love seeing Jacob’s friends and wondering what he might have been like now had he been healthy. Ours is not a unique experience. Our many friends who’ve lost children to cancer are remembering their kids the same way as well.
Thank you for your generous support and friendship. It is what makes Kids v