The study we co-authored identified knowledge gaps and misperceptions about the compassionate use application process among pediatric oncologists and echoes new FDA’s Expanded Access Program Report. more→
Kids v Cancer
Changing the landscape of pediatric research
What we do
RACE FOR CHILDREN ACT, 21 USC 355c
Requires companies developing molecularly targeted cancer drugs to undertake pediatric studies.
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THE CREATING HOPE ACT PEDIATRIC PRIORITY REVIEW VOUCHER PROGRAM, 21 USC 360ff
Has created over $1 billion of voucher incentives for rare pediatric drug development.
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COMPASSIONATE USE NAVIGATOR
We support physicians’ efforts to save children by helping to obtain investigational drugs.
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TISSUE DONATION
We help families of children with terminal brain cancer donate their child’s post mortem tumor tissue to research.
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KIDS' ELIGIBILITY FOR TRIALS
We applaud the FDA’s new guidance urging companies to include teens on adult cancer trials when appropriate.
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Our stories
These are stories of love and strength, of loss and despair, of hope, of kids who fight with us and who we fight for.
Thank You for Your Support of the RACE for Children Act Vol. 3 (2017)
Thank You for Changing the Landscape of Pediatric Cancer Vol. 2 (2016)
Thank You for Your Support of the Creating Hope Act Vol. 1 (2013)
Have you, or your sibling, or your child had cancer? We'd love to include your story in a book for members of Congress.
Recognition of our work
