Faces of childrens cancer

Bringing you

the Creating Hope Act Rare Pediatric Disease Priority Review Vouchers and the RACE for Children Act

What we do

The Kids Act/RACE for Children Act

RACE FOR CHILDREN ACT, 21 USC 355c

Requires companies developing molecularly targeted cancer drugs to undertake pediatric studies.
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The Creating Hope Act

THE CREATING HOPE ACT PEDIATRIC PRIORITY REVIEW VOUCHER PROGRAM, 21 USC 360ff

Has created over $1 billion of voucher incentives for rare pediatric drug development.
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Compassionate Use Navigator

COMPASSIONATE USE NAVIGATOR

We support physicians’ efforts to save children by helping to obtain investigational drugs.
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Tissue Donation

TISSUE DONATION

We help families of children with terminal brain cancer donate their child’s post mortem tumor tissue to research.
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Trial Eligibility

KIDS' ELIGIBILITY FOR TRIALS

We applaud the FDA’s new guidance urging companies to include teens on adult cancer trials when appropriate.
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Take action

Youth Advocacy Days

Join us for Advocacy Days on Capitol Hill.  See photos and sign-up here! Here are photos of our advocates participating in the annual CureFest on the National Mall.

PEDIATRIC CANCER LEGISLATIVE YEARBOOK

Join our Parent Council

Spread the word to help families seek compassionate use drugs or donate autopsy tissue for research.

Our stories


Thank you book volume 3 thumbnail

Recent news

 

Recognition of our work

FDA Priority Review Vouchers - over $1 Billion sold
Award winner - Fast Company's Top 10 Most Innovative Non-for-Profit Companies
Winner of the Peter F. Drucker Award for Nonprofit Innovation
Best in America - Independent Charities of American
Science Magazine
Nancy Goodman, recipient of Rare Voice award
Nature Magazine
The 100 Everyday Amazing