Introduced in the House of Representatives on 9/20/2019, Creating Hope Reauthorization Act (H. R. 4439) seeks to make the Rare Pediatric Disease Priority Review Voucher program permanent. more→
Kids v Cancer
Changing the landscape of pediatric research
What We Do
RACE FOR CHILDREN ACT, 21 USC 355c
Requires companies developing molecularly targeted cancer drugs to undertake pediatric studies.
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THE CREATING HOPE ACT PEDIATRIC PRIORITY REVIEW VOUCHER PROGRAM, 21 USC 360ff
Has created over $1.5 billion of voucher incentives for rare pediatric drug development.
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COMPASSIONATE USE NAVIGATOR
We support physicians’ efforts to save children by helping to obtain investigational drugs.
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TISSUE DONATION
We help families of children with terminal brain cancer donate their child’s post mortem tumor tissue to research.
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KIDS' ELIGIBILITY FOR TRIALS
We applaud the FDA’s new guidance urging companies to include teens on adult cancer trials when appropriate.
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CLIMB THE HILL
Leave your parents and teachers behind. A day on Capitol Hill for kids to be the voice of children with cancer. Next up: 4/16, 6/27, 9/20, 9/23.
Register here »
Our Stories
These are stories of love and strength, of loss and despair, of hope, of kids who fight with us and who we fight for.
Have you, or your sibling, or your child had cancer? We’d love to include your story in a book for Congress.
Recognition of Our Work
